My youngest, Keaton, has always had gut issues and doesn't sleep. They all kind of came to a head the past couple of weeks and the poor kid was just writhing in pain at night and having 9-11 diarrhea diapers, per day. I've talked to the doctors in the past about his issues - but it was always put down to food intolerances. This time, though, he was losing weight and apparently that (and bloody diapers) are the way to get people to pay attention.
They took a bunch of blood (Hello? Dr. Phil? I'm traumatized. Send help.) and ran a bunch of tests. Results? Mostly favorable. Normal blood work. White count was fine. TSH (thyroid) was fine. No major red flags anywhere. Allergy panel came back clean - but we still think he has Cow's Milk Colitis (aka Dairy Intolerance). Oh, yeah, and he has C. Diff (ugh).
Then this is where things got a little murky. His Immunoglobulin was low. His celiac test came back inconclusive. And one other test that I can't remember was a bit iffy. When I asked what this means the nurse, I kid you not, said, "You know, I don't know!" and just left it at that. No - "Let me find out and call you back!" not even an, "I'll leave the Dr. a note to give you a call." Just an "I don't know ask when you come back on the 14th." thankyouverymuchyouvebeeneversohelpful.
So, now we're on a gluten free diet, as well. No dairy and no gluten...oh, and I'm still soy free. And I'm researching Celiac Disease and I think I'm drowning in information. Separate pans and plates?? Gluten free shampoo and soap??? There's gluten in Black Olives??!!
SHUT THE FRONT DOOR!
*scream* I am literally sitting here panting. Well, ok, breathing fast. And a little hard. So, yeah...panting. Panic attack, party of heidi - your table is ready!
I know, I know, breathe. In with the good clean sparkly air, out with the black nasty tar air. I'm lightheaded.
So, anyway. Yeah.
Oh - right..on the 14th we go back in. He'll have completed his 10 days of antibiotics for the C. Diff (um, gross, btw) and we'll have been Gluten Free for 2 weeks. Then I guess we add gluten back in to my diet (we're still breastfeeding [I typed bread feeding - HA! I miss bread!]) and see how he reacts. If he does ok we try it in his. If he reacts then..uh..I have no idea. I'm asking for a referral to a specialist. (Hear me, Kim? I'm gonna need a room at Chez Funk!)
But what I don't get..through all of this - if he's on the abx for C. Diff and we're gluten free - then WHY did he have gut pain last night and writhe around in pain while trying to sleep?
I'd ask at my Ped.'s office but, yk, they don't know and stuff.
The end.
Keaton enjoying his Quinoa, tomatoes, black beans and corn for lunch.
Posts
