My youngest, Keaton, has always had gut issues and doesn't sleep. They all kind of came to a head the past couple of weeks and the poor kid was just writhing in pain at night and having 9-11 diarrhea diapers, per day. I've talked to the doctors in the past about his issues - but it was always put down to food intolerances. This time, though, he was losing weight and apparently that (and bloody diapers) are the way to get people to pay attention.
They took a bunch of blood (Hello? Dr. Phil? I'm traumatized. Send help.) and ran a bunch of tests. Results? Mostly favorable. Normal blood work. White count was fine. TSH (thyroid) was fine. No major red flags anywhere. Allergy panel came back clean - but we still think he has Cow's Milk Colitis (aka Dairy Intolerance). Oh, yeah, and he has C. Diff (ugh).
Then this is where things got a little murky. His Immunoglobulin was low. His celiac test came back inconclusive. And one other test that I can't remember was a bit iffy. When I asked what this means the nurse, I kid you not, said, "You know, I don't know!" and just left it at that. No - "Let me find out and call you back!" not even an, "I'll leave the Dr. a note to give you a call." Just an "I don't know ask when you come back on the 14th." thankyouverymuchyouvebeeneversohelpful.
So, now we're on a gluten free diet, as well. No dairy and no gluten...oh, and I'm still soy free. And I'm researching Celiac Disease and I think I'm drowning in information. Separate pans and plates?? Gluten free shampoo and soap??? There's gluten in Black Olives??!!
SHUT THE FRONT DOOR!
*scream* I am literally sitting here panting. Well, ok, breathing fast. And a little hard. So, yeah...panting. Panic attack, party of heidi - your table is ready!
I know, I know, breathe. In with the good clean sparkly air, out with the black nasty tar air. I'm lightheaded.
So, anyway. Yeah.
Oh - right..on the 14th we go back in. He'll have completed his 10 days of antibiotics for the C. Diff (um, gross, btw) and we'll have been Gluten Free for 2 weeks. Then I guess we add gluten back in to my diet (we're still breastfeeding [I typed bread feeding - HA! I miss bread!]) and see how he reacts. If he does ok we try it in his. If he reacts then..uh..I have no idea. I'm asking for a referral to a specialist. (Hear me, Kim? I'm gonna need a room at Chez Funk!)
But what I don't get..through all of this - if he's on the abx for C. Diff and we're gluten free - then WHY did he have gut pain last night and writhe around in pain while trying to sleep?
I'd ask at my Ped.'s office but, yk, they don't know and stuff.
The end.
Keaton enjoying his Quinoa, tomatoes, black beans and corn for lunch.
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12 comments:
Chez Funk is always open to you, Heidi. You can even call while on your slow moving road trip. I'm easy like that. I have added a puppy since you were last here, but I've gotten rid of 2 people.
That sucks and I would be knocking down the peds door until they gave answers. That is bullshit to tell someone they don't know and to ask again later.
On a more personal note, a good friend of ours has Celiacs and he does SO much better when he's on the diet. His parents went through years of trying to figure out what was going on with him. Now there are so many things that are available GF.
So no gluten...no dairy... no soy... what exactly are you living on? I can't believe you're still upright. I can't imagine.
I'm saying a pray for the little one. :( Is it possible he's allergic to your breast (bread) milk? OMG... I totally typed "dread" instead of bread... weirdness.
♥ sécia
www.petiteinsanities.blogspot.com
Poor guy...and poor you too! I hope they figure it out soon! I know from experience that dealing with food allergies is no fun. My oldest had dairy and egg allergies when he was younger, and I remember having such a hard just trying to find something that was okay for him to snack on!
Has his diarrhea stopped? Maybe he's still experiencing cramping. That c-diff is nasty stuff. I have a friend who has been through two serious bouts with that. It's terribly painful.
Bless his heart...I'm praying for Keaton!
Oh I hope that they get to the bottom of his tummy troubles and he starts feeling better. And he is such a cutie!
I'm really no help but Luke has had C diff.. even on antibiotics he was screaming with his belly hurting :( He has had lots of test and only thing we know is reflux.. yes still and he is almost 7:( I hope lil man starts feeling better soon and you figure it all out!
Oh, man, I'm sorry you guys are struggling with this. Belly pains will ruin your whole day. I struggle with some gut issues as well, and it can be so hard to manage food as an adult, I can't imagine the frustration of doing it as a child. Hugs to you and a butt kicking to your pediatrician's office.
That sucks!
Girl you certainly have your hands full don't you!
The 14th was yesterday...what the hello happened at Doctor I don't know jack's office?
Oh, ugh. What a complete and exhausting bummer. I hope you get some better news soon. That boy is way too adorable to be miserable (and make mom miserable, by association).
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